Mike took Madaya to her Allergist yesterday and had the next set of allergy testing done along with the follow up and visit for her recent actions.
Madaya has been sneezing, complaining of a sore throught and mouth, itching her eyes, snoring, being moody, distended belly, and wheezing most days lately for the past 2 months ( it started the week before her birthday party ). We had her to the pedi 2 times and both times she repeated that it appears to be brought on my allergies and her system in general the fevers spike, the nose gets clear and runny yet we never find anything - so we waited for this appointment.
The Dr that saw her was new to us, because her Dr. is out on maternity leave, so he was on the cautious side and wanted to know exactly who and what with Madaya which lead to an all over exam again and going back to the basics.
We started with things in our home. I.e. Dog, Rabbit, Fruit, Veggies etc... and then went on with other things we have noticed I.e. Cat, Trees, Grass, Mold ....
All of those two panels were negative except : Cat ( all 3 markers ) Dog ( 1 marker - Long Hair ) and the other environmental were all 1's. They think because she is in a " Histimine Reactive " state right now so some will have to be repeated.
The cat allergy was severe at a 9+ of 8 @ 15 minutes. And the Dog 1:8 @ 20 min.
The route for now it to bring her into check and to get her regular again. She is out of it, moody, bouncing off the walls, and a truely uncomfortable state most of the day.
We will treat with allergy meds 2 times a day, and using her new ProAir Inhaler 4 times a day or as needed to control the asthma that is coming along with these reactions.
We have to keep a record of reactions, places weve been etc for 3 months and see if we can find a pattern.
The allergist and Immunologist says that these things sometimes just get worse with age, instead of better and maybe thats the case with Roo. Last time the cat was a mild reaction of 2:8. and Dog 0:8.
Here is hoping to some quick releif though and finally some answers.
Let the momma guilt begin. I should have known better. She hasn't been herself in a while.
Tuesday, November 24, 2009
Thyroid Scan results
The results of Friday's thyroid scan were just as we suspected but not as bad :).
It's a tricky situation and will take alot to figure out.
My thyroid is really inlarged and shows much sign of being over active or over stimulated. The meds they have me on are not bringing it within range yet and we will be working harder to obtain those results.
I am starting to feel many of the effects of it being too high. I am hungry ALL THE TIME, eating way more, still loosing weight way to quickly, racing heart esp when up and moving, headaches and blurred vission. I am also still having troubles sleeping and with my emotions and feeling anxious. They assure me that all it is, is that its out of control.
I am thankful they don't think its cancer at this point and that the enlargement of the glad can be fixed, but that doesn't mean I am healthy or that we know what next.
I guess I have to put my big girl panties on and wait it out but damn, this sucks!
My daughter would love to have her calm, collected momma back and my husband could use his wife with her hormones in check and emotions to follow.
It's a good thing they love me - I have been a mess!
It's a tricky situation and will take alot to figure out.
My thyroid is really inlarged and shows much sign of being over active or over stimulated. The meds they have me on are not bringing it within range yet and we will be working harder to obtain those results.
I am starting to feel many of the effects of it being too high. I am hungry ALL THE TIME, eating way more, still loosing weight way to quickly, racing heart esp when up and moving, headaches and blurred vission. I am also still having troubles sleeping and with my emotions and feeling anxious. They assure me that all it is, is that its out of control.
I am thankful they don't think its cancer at this point and that the enlargement of the glad can be fixed, but that doesn't mean I am healthy or that we know what next.
I guess I have to put my big girl panties on and wait it out but damn, this sucks!
My daughter would love to have her calm, collected momma back and my husband could use his wife with her hormones in check and emotions to follow.
It's a good thing they love me - I have been a mess!
Daycare Vs. Preschool = We have a headache
I was offered and accepted the PT position as a Newborn Hearing Screener and Mike and I decided we better line up child care now.
My job won't start really until DEC 7th with only 1 day a week for training for this week and next then 2 weeks FULL TIME then stepping into my normal routine/schedule so its been hard to see where, and when we need care.
I have a close family friend who said she would be willing to keep Daya and that's still a close running but we have to figure travel time, gas and cost of food etc.
With that we decided maybe we would try Pre-School as I know at must she will only need 3 days a week just about 4-5 hours those days tops.
Ha - We have been to every place in the city trying to find a place for our lil roo and only 4 are in our relm of consideration.
Here is our headache :
Do we put her in a scheduled pre-school where she could learn most of the day and have some playtime or do we put her in a " daycare " where she plays most of the day and learns minimally other than through interaction?!
All are about cost wise the same, some just offer more of a structure which we do beleive Daya thrives on.
However is doing that to her all the time healthy?
Weve been trying to weigh this option too.... what about preschool 2 days a week and family care/sitting 1 day a week. Happy medium?!
Oy....
It will really help next week when I know about what the schedule MAY be. There is a chance I won't need to put her anywhere more than 4-5 hours total a week?! We will see ...
Until then we are open to ideas!
( please note that my wages arent much to pay a ton in childcare )
My job won't start really until DEC 7th with only 1 day a week for training for this week and next then 2 weeks FULL TIME then stepping into my normal routine/schedule so its been hard to see where, and when we need care.
I have a close family friend who said she would be willing to keep Daya and that's still a close running but we have to figure travel time, gas and cost of food etc.
With that we decided maybe we would try Pre-School as I know at must she will only need 3 days a week just about 4-5 hours those days tops.
Ha - We have been to every place in the city trying to find a place for our lil roo and only 4 are in our relm of consideration.
Here is our headache :
Do we put her in a scheduled pre-school where she could learn most of the day and have some playtime or do we put her in a " daycare " where she plays most of the day and learns minimally other than through interaction?!
All are about cost wise the same, some just offer more of a structure which we do beleive Daya thrives on.
However is doing that to her all the time healthy?
Weve been trying to weigh this option too.... what about preschool 2 days a week and family care/sitting 1 day a week. Happy medium?!
Oy....
It will really help next week when I know about what the schedule MAY be. There is a chance I won't need to put her anywhere more than 4-5 hours total a week?! We will see ...
Until then we are open to ideas!
( please note that my wages arent much to pay a ton in childcare )
Sunday, November 22, 2009
Disney On Ice : Worlds Of Fantasy
Mike and I got tickets to go to Disney on Ice : Worlds Of Fantasy with Madaya this year. We wanted to take her but thought tickets were a little pricey. Upon googling late at night one night however I found a great deal on seats 2 rows back from the ice! The next morning I called SIL and asked if she wanted to take Toria too - Of course who wouldn't right?!
We went tonight and it was fabulous. Madaya loved every minute of it and our seats were great. We really were able to see alot.
Madaya was much of a character as she started to get mad because Tinkerbell wasn't coming out when the other shows were. She did not want to wait to see her - but when she came it was well worth the wait ...
Here is the down fall. First of all I didn't bring my " baby" ( camera ) and only had my point and shoot ( they took it away last time I tried ) and selina armed with only her Iphone and PNS camera as well.... we werent able to get much as to pics, and BOTH OUR BATTERIES DIED and we couldn't get shots of the best at the end. Grrrr...
All in all though so worth it and so fun, and the look on the girl's face when the show was going alone is worth way more than we paid in time and dollars :)
We went tonight and it was fabulous. Madaya loved every minute of it and our seats were great. We really were able to see alot.
Madaya was much of a character as she started to get mad because Tinkerbell wasn't coming out when the other shows were. She did not want to wait to see her - but when she came it was well worth the wait ...
Here is the down fall. First of all I didn't bring my " baby" ( camera ) and only had my point and shoot ( they took it away last time I tried ) and selina armed with only her Iphone and PNS camera as well.... we werent able to get much as to pics, and BOTH OUR BATTERIES DIED and we couldn't get shots of the best at the end. Grrrr...
All in all though so worth it and so fun, and the look on the girl's face when the show was going alone is worth way more than we paid in time and dollars :)
( I will post pics when the battery is strong enough to load them! )
Wednesday, November 18, 2009
Back to work I go
Despite the issue of my health as of lately I have decided to go to work PT. 2 main reasons 1.) To make me feel more usefull ( cause being super mom doesnt always cut it! ) and 2.) To pay for daya to go to preschool and get her some routine other than momma.
I took my time and did not really apply too many places mainly because its not a MUST. But 2 weeks ago I applied for my dream job ( ok close to ).
And today ...
I GOT IT!
I will be the Newborn hearing screener for Sacred Heart Hospital/Pediatrix Med corp. and will start 11/23!!!!!!
More details to come but they are working on getting my office and supplies ready for me and I am so excited!
We will now have to mad hunt for preschool/child care for roo....
Fingers Crossed!
I took my time and did not really apply too many places mainly because its not a MUST. But 2 weeks ago I applied for my dream job ( ok close to ).
And today ...
I GOT IT!
I will be the Newborn hearing screener for Sacred Heart Hospital/Pediatrix Med corp. and will start 11/23!!!!!!
More details to come but they are working on getting my office and supplies ready for me and I am so excited!
We will now have to mad hunt for preschool/child care for roo....
Fingers Crossed!
My today.
This is our blog about yesterday, TODAY and tomorrow so here is my post for today.
Today I am very sad, but in a way a little releived. I guess you can say I was holding or trying to hold on to a friendship that I loved dearly.
Its been missing a while and today I found out that really we just don't fit at all. Not in anyway. Both selfish I guess and deffinetely in different stages of life. Someday I bet they will see but for now I will let it be what it is.
It hurts because it wraps up many many many emotions and things and memories and it stings because shes jaded and beleives only what she wants to.
the thing I thinkI hate the most is she belelieves I must sit around with the " family " and talk shit about others, when in reality I don't think anything has been said but " we miss.... " in AGES they nipped that in the butt and people in general knew its not our thing. sigh... insecurity is what they warned me about.
Many warned us of this from our friends to my physcologist so in all honesty I am going to try to get through this with out too much fret.
It really sucks that it happened near the holidays and near so much going on in our lifes but what they said rings true and no matter what they will still be family.
Just family that apparently we will get to see on their terms in their ways once a year? Lord knows its not going to be this year?!
Its scarey because I think about the things they will miss, the things they wont know or even care about and lord forbid the bad things too.
I will continue to update this blog since it is our family blog though and maybe that way they can kind of see and not have to pretend.
Madaya does have her specialist apt monday to discuss the options of a feeding tube, and the allergies back to back 8 am and 10am.
My cancer screens are this Fri - and next week.
and Mike leaves mid January if all is on track.
Looks like a couple of people get to say " I told you so " and that sucks too. I hate it when people say that!
Today I am very sad, but in a way a little releived. I guess you can say I was holding or trying to hold on to a friendship that I loved dearly.
Its been missing a while and today I found out that really we just don't fit at all. Not in anyway. Both selfish I guess and deffinetely in different stages of life. Someday I bet they will see but for now I will let it be what it is.
It hurts because it wraps up many many many emotions and things and memories and it stings because shes jaded and beleives only what she wants to.
the thing I thinkI hate the most is she belelieves I must sit around with the " family " and talk shit about others, when in reality I don't think anything has been said but " we miss.... " in AGES they nipped that in the butt and people in general knew its not our thing. sigh... insecurity is what they warned me about.
Many warned us of this from our friends to my physcologist so in all honesty I am going to try to get through this with out too much fret.
It really sucks that it happened near the holidays and near so much going on in our lifes but what they said rings true and no matter what they will still be family.
Just family that apparently we will get to see on their terms in their ways once a year? Lord knows its not going to be this year?!
Its scarey because I think about the things they will miss, the things they wont know or even care about and lord forbid the bad things too.
I will continue to update this blog since it is our family blog though and maybe that way they can kind of see and not have to pretend.
Madaya does have her specialist apt monday to discuss the options of a feeding tube, and the allergies back to back 8 am and 10am.
My cancer screens are this Fri - and next week.
and Mike leaves mid January if all is on track.
Looks like a couple of people get to say " I told you so " and that sucks too. I hate it when people say that!
Tuesday, November 17, 2009
Name Change
Guess what Guess what?!
You said what?
Ok ---- WE GOT OUR NAME CHANGE PETITIONS!!!
now all that's left is we have to just file them in the Superior courts ( which we still plan to do before the new year ).
And then wait for them to be finalized :). ( add in lots of name change paperwork and records )
Mike and I are super excited. Once thats done we also plan to file legal gaurdianship of Madaya and our living and last testiment wills. All long over due, scarey to think about but must be done.
With Mike going in the service soon, and me just being me its a must that we get these done, recorded and know exactly what happens. The service makes us have it all done apparently. wow - if thats not comforting right/! UGH
If any of you have any input on wills, gaurdianship wishes and or legal matters we would be really interested in hearing your ideas. If it helps solve issues later then great!
Please email us if you have something or advice to share.
Oh I was going to say that No we are not planning on renewing our vows yet ( I secretly think the MR has something up his sleeve though ) and Yes, we will have a service to dedicate Madaya and our new family :) We will keep you posted.
You said what?
Ok ---- WE GOT OUR NAME CHANGE PETITIONS!!!
now all that's left is we have to just file them in the Superior courts ( which we still plan to do before the new year ).
And then wait for them to be finalized :). ( add in lots of name change paperwork and records )
Mike and I are super excited. Once thats done we also plan to file legal gaurdianship of Madaya and our living and last testiment wills. All long over due, scarey to think about but must be done.
With Mike going in the service soon, and me just being me its a must that we get these done, recorded and know exactly what happens. The service makes us have it all done apparently. wow - if thats not comforting right/! UGH
If any of you have any input on wills, gaurdianship wishes and or legal matters we would be really interested in hearing your ideas. If it helps solve issues later then great!
Please email us if you have something or advice to share.
Oh I was going to say that No we are not planning on renewing our vows yet ( I secretly think the MR has something up his sleeve though ) and Yes, we will have a service to dedicate Madaya and our new family :) We will keep you posted.
When he goes...
When he goes :
What will we do?
Who will keep me company when I am wide awake staring at the ceiling at 2am?
What kind of joy will daya and I find in " family time "?
Who will support me as much and as fully and my best friend?
Will he know just how much he is loved and missed?
Will he think of us each second as much as we will think of him?
What will it be like to not talk to my other 1/2 for days on end?
What will he look like when he comes home?
When he goes - what happens to us?
Does he have to go?
What will we do?
Who will keep me company when I am wide awake staring at the ceiling at 2am?
What kind of joy will daya and I find in " family time "?
Who will support me as much and as fully and my best friend?
Will he know just how much he is loved and missed?
Will he think of us each second as much as we will think of him?
What will it be like to not talk to my other 1/2 for days on end?
What will he look like when he comes home?
When he goes - what happens to us?
Does he have to go?
Monday, November 16, 2009
Do you guys even know?
I heard loud and clear today that again ( despite our tries to not be in it all ) some of the family is very upset with me because ( this is just one reason I guess ( But I am confused ) ) I didn't let them see Madaya on Halloween?!
I took a deep breath before I wrote this, got all my crying out and thought about it and all I want to ask are these things:
Do you guys even know why/ or what has been going on with Madaya? Why we didn't go trick or treating or everywhere or what we even DID do for Halloween?
Did you know she has been so sick and underweight again that they are talking a possible feeding tube if we can't figure her out and keep her up on the charts by her adjusted 3 year mark, we are doing asthma treatments 4 times a day via nebulizer, and lets add in there the added meds for her stomach which apparently is still under developed and not closing causing lots of reflux and her weight loss. She was sick for 3 weeks before halloween, all through halloween, and still just now recovering although this past weekend was a set back.
Do you guys even know that I myself have been super ill. My thyroid is giving me hell - and they are screening for thyroid cancer. I have been sickly and not doing well at all. Lets add to this the anemia and my lack of any energy. No worries though the Dr's have me under control.
Do you guys know that we do miss you and love you but get frustrated that we don't seem to be good enough for any of you? that we don't ever seem to fit in with your busy plans, and lifes. It sucks.
Do you guys know we weren't really having " Tofu turkey " and that it's not very nice of you to make fun of how we eat healthy if you choose not to understand it or ask?
Do you guys even know what else is going on ... do you want to?
Do you guys even know how much we want our FAMILY together way more often, and not just for the " HOLIDAYS " ?
I wish you would have just come to me - not said anything to her about how hurt you are by us, because again it causes problems. Things for us are no different. We are just waiting to see when you guys figure out that we have been here the whole time. To find out where we do fit with you.
Of course I want to see you all for the Holidays I want to see you more than that - but sounds like we don't even get that chance. Sucks.
I took a deep breath before I wrote this, got all my crying out and thought about it and all I want to ask are these things:
Do you guys even know why/ or what has been going on with Madaya? Why we didn't go trick or treating or everywhere or what we even DID do for Halloween?
Did you know she has been so sick and underweight again that they are talking a possible feeding tube if we can't figure her out and keep her up on the charts by her adjusted 3 year mark, we are doing asthma treatments 4 times a day via nebulizer, and lets add in there the added meds for her stomach which apparently is still under developed and not closing causing lots of reflux and her weight loss. She was sick for 3 weeks before halloween, all through halloween, and still just now recovering although this past weekend was a set back.
Do you guys even know that I myself have been super ill. My thyroid is giving me hell - and they are screening for thyroid cancer. I have been sickly and not doing well at all. Lets add to this the anemia and my lack of any energy. No worries though the Dr's have me under control.
Do you guys know that we do miss you and love you but get frustrated that we don't seem to be good enough for any of you? that we don't ever seem to fit in with your busy plans, and lifes. It sucks.
Do you guys know we weren't really having " Tofu turkey " and that it's not very nice of you to make fun of how we eat healthy if you choose not to understand it or ask?
Do you guys even know what else is going on ... do you want to?
Do you guys even know how much we want our FAMILY together way more often, and not just for the " HOLIDAYS " ?
I wish you would have just come to me - not said anything to her about how hurt you are by us, because again it causes problems. Things for us are no different. We are just waiting to see when you guys figure out that we have been here the whole time. To find out where we do fit with you.
Of course I want to see you all for the Holidays I want to see you more than that - but sounds like we don't even get that chance. Sucks.
Do you guys even know?
Thyroid scares me.
2 weeks ago I got a call from my Endo that my thyroid levels were at a deadly level. Litterally. They call it " Thyro-toxicity ". Turn a long story shorter : She prescribed a beta blocker to protect my heart and get things sponged up and lowered my meds 75% will retest in 4-6 weeks.
What scares me ...
Well.
The fact that for the past 17 years we have been dealing with Thyroid issues only 3 times have we ever managed to get a handle on it and get the levels right. I have always had " a goiter " which is a large mass in my throught and I have been struggling with the weight gain from being " HYPO (low) thyroid " It appears since surgery however that I am now HYPER ( too high ) thyroid and that brings issues of its own in to play. This last scare was new to me and upon researching what it meant it has become clear that I MAY have a cancerous lump or a non-cancerus cyst on my thyroid. We will pursue more testing to be sure but even the endo is hard up for answers as to why with great care my thyroid is still all over the place.
There is something going on ( other than rapid weight loss ) that is preventing my system from getting the correct level of thyroid hormones. sometimes my natural thyroid seems to work and others not so much... scarey!
lets add this current issue and mind thought : Its virtually impossible to get pregnant and stay pregnant with a thyroid with killer cells ( most thyroid patients have killer cells if levels arent controlled ) and its apparently deadly if the levels become too high. Ie. heart attack, shock and even poor circulation can happen causing permanate damage. Damn it I just want to be normal. I don't have the ability to fight all this much longer. It's a dangerous game to play - adjusting meds all the time not to mention what it does to emotions, depression issues, anxiety, and even body. I am a mess. I want it figured out.
This next week they will be doing a Ultrasound and repeat tests on the thyroid to see where my levels are and IF there is something we will come up with a plan.
The other thought that is possibly since I am post RNY surgery it may be my system not absorbing the meds correctly.
I am now putting on weight - thank god - but that has to be watched because too much can be bad.
The thyroid controlls EVERYTHING!
Thyroid scares me!
What scares me ...
Well.
The fact that for the past 17 years we have been dealing with Thyroid issues only 3 times have we ever managed to get a handle on it and get the levels right. I have always had " a goiter " which is a large mass in my throught and I have been struggling with the weight gain from being " HYPO (low) thyroid " It appears since surgery however that I am now HYPER ( too high ) thyroid and that brings issues of its own in to play. This last scare was new to me and upon researching what it meant it has become clear that I MAY have a cancerous lump or a non-cancerus cyst on my thyroid. We will pursue more testing to be sure but even the endo is hard up for answers as to why with great care my thyroid is still all over the place.
There is something going on ( other than rapid weight loss ) that is preventing my system from getting the correct level of thyroid hormones. sometimes my natural thyroid seems to work and others not so much... scarey!
lets add this current issue and mind thought : Its virtually impossible to get pregnant and stay pregnant with a thyroid with killer cells ( most thyroid patients have killer cells if levels arent controlled ) and its apparently deadly if the levels become too high. Ie. heart attack, shock and even poor circulation can happen causing permanate damage. Damn it I just want to be normal. I don't have the ability to fight all this much longer. It's a dangerous game to play - adjusting meds all the time not to mention what it does to emotions, depression issues, anxiety, and even body. I am a mess. I want it figured out.
This next week they will be doing a Ultrasound and repeat tests on the thyroid to see where my levels are and IF there is something we will come up with a plan.
The other thought that is possibly since I am post RNY surgery it may be my system not absorbing the meds correctly.
I am now putting on weight - thank god - but that has to be watched because too much can be bad.
The thyroid controlls EVERYTHING!
Thyroid scares me!
Subscribe to:
Posts (Atom)
